Huntington's Disease Society of America


 

About

The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.

What is Huntington’s Disease?
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.

HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene.

Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

Our History & Fast Facts
HDSA was founded in 1968 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications in 1967 when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.

Across the United States, HDSA currently supports:
• 54 volunteer led Chapters & Affiliates
• 39 Centers of Excellence
• 40 Social Workers
• 170+ Support Groups 

At HDSA, Family is everything! 

Social
      Website
GivePulse
1 Person | 0 Impacts | 0 Hours

Affiliates (1) View All

Events


Loading...

Wall